SuperKenzie went to her first parade on Saturday! She was not too sure about the fire truck and police sirens 😬 She got very excited when she saw big brother and sister pass by in the parade route.
With Kenzie feeling better this last week, we have slowly been able to pick back up with therapies such as being in the stander and on her e-bike. Kenzie has a very variable sleep schedule. The last several days she has decided to take a few hour nap in the late afternoon and then be awake until 3am or 7am. If Kenzie is tired there is no keeping her awake or “making” her go to sleep. We are sure as the next few years go by she will get on a “normal” slept schedule. Very grateful for night shift coverage. Along with routine care needs, night shift also gets in a lot of reading, playtime etc.
I spoke with insurance this week regarding our 2nd level appeal to obtain approval for Kenzie to have surgery for a diaphragm pacer. I was informed that insurance has another 14 days, but up to a total of 45 days to provide an outcome. Hoping we have an answer (and it is an approval 🙏🏻) within this next week.