Category: Updates

Kenzie girl has had a good week 💗 we are so greatful after having a very long 3 weeks of Kenzie having a cold and uncomfortable days. Appreciate every minute Kenzie has of stability and comfort. I spoke with insurance today and we should be notified of an outcome of the 2nd level appeal for the surgery of a diaphragmatic pacer by the 13th 🙏🏻🤞.

Shipping out of SuperKenzue shirts has begun! Excited for people to get their shirts and start wearing them in support of SuperKenzie and her journey with Transverse Myelitis.
SuperKenzie shirts continue to be available for purchase at
https://squareup.com/store/tl-design/

SuperKenzie went to her first parade on Saturday! She was not too sure about the fire truck and police sirens 😬 She got very excited when she saw big brother and sister pass by in the parade route.
With Kenzie feeling better this last week, we have slowly been able to pick back up with therapies such as being in the stander and on her e-bike. Kenzie has a very variable sleep schedule. The last several days she has decided to take a few hour nap in the late afternoon and then be awake until 3am or 7am. If Kenzie is tired there is no keeping her awake or “making” her go to sleep. We are sure as the next few years go by she will get on a “normal” slept schedule. Very grateful for night shift coverage. Along with routine care needs, night shift also gets in a lot of reading, playtime etc.
I spoke with insurance this week regarding our 2nd level appeal to obtain approval for Kenzie to have surgery for a diaphragm pacer. I was informed that insurance has another 14 days, but up to a total of 45 days to provide an outcome. Hoping we have an answer (and it is an approval 🙏🏻) within this next week.

SuperKenzie is back to feeling good and over her cold! It has been a very long 3 weeks of Kenzie having a cold. We are very grateful for her returned stability and comfort. Now back to healing and getting her spine to reconnect. This last weekend we made it to the river as a family. Kenzie did great traveling and enjoyed watching the river flow (the river is very high and fast right now).

We want to give a very special THANK YOU to the Colville Junior High School 8th graders! The 8th grade class recently had their 8th grade social dance and this year they choose to donate the money raised from the dance to SuperKenzie, in support of her caregiving needs. We were very humbled when asked by the 8th grade ASB president and very blessed by continued support from our local community. It is so wonderful to see the school district teaching kids at a young age how important it is to give back to their community.